I went to the monthly meeting for the
Houston Chapter of Net2 (Net Squared) last night. The guest speaker that we had was
Reggie Bibbs.
Reggie has a condition called
neurofibromatosis (NF). NF is a genetic disorder of the nervous system that causes tumors to form on the nerves any where in the body at any time. Reggie started a campaign, called "Just Ask", which I personally think is just
brilliant. He had some t-shirts made with his logo and slogan, "Just Ask!" on the back. I saw
Jason at work wear a shirt and I said,
"Hey, Jason; just ask what?"
And he told me all about Reggie and NF and Reggie's
flickr site;
blog and
website.
We also got to hear from the president of the
Texas Neurofibromatosis Foundation, Suzanne Miller. Suzanne's daughter also has NF, though she doesn't have any outward symptoms.
I didn't know much about NF, but I found out last night that it is more prevalent than cystic fibrosis, hereditary muscular dystrophy, Hungtington's disease and Tay Sach's combined.
Wow!
The
purpose of NetSquared is to use technology to effect social change. Last night's meeting definitely enlightened me on a social cause that I knew close to nothing about and showed me how inspirational one man can be.
Labels: net2, neurofibromatosis, NF, reggie bibbs, Texas Neurofibromatosis Foundation